• Patient Voice

    The Road to Patient Advocacy in Rare Diseases

    The road to patient advocacy can be a long haul especially for those living with a rare disease. The waiting time, the unknown and the lack of education can leave patients and their caregivers grasping for even the littlest of information and support from medical communicators, physicians, and the like. Colleen Plunkett’s son K.E. Plunkett has gone through a tremendous…

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