• Patient Voice

    The Road to Patient Advocacy in Rare Diseases

    The road to patient advocacy can be a long haul especially for those living with a rare disease. The waiting time, the unknown and the lack of education can leave patients and their caregivers grasping for even the littlest of information and support from medical communicators, physicians, and the like. Colleen Plunkett’s son K.E. Plunkett has gone through a tremendous…

  • Spotlight

    A Day In The Life of Communications Manager, Amity Westcott-Chavez

    Digital patient advocacy is one area of the profession that medical communicators specialize in especially in regards to rare disease focused organizations. This past February I had the chance to speak with Communications Manager for The American Partnership for Eosinophilic Disorders (APFED), Amity Wescott-Chavez on her role as an essential worker in the field. This is part one of a…

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