The road to patient advocacy can be a long haul especially for those living with a rare disease. The waiting time, the unknown and the lack of education can leave patients and their caregivers grasping for even the littlest of information and support from medical communicators, physicians, and the like. Colleen Plunkett’s son K.E. Plunkett has gone through a tremendous…
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An Executive Director’s Take on Medical Communication
When you hear the term medical communication what is the first thing that comes to your mind? Maybe you are thinking of patient advocacy, or the mediums that go along with the field… The field of medical communication is made up of a vast array of mediums, tools and positions that help to facilitate patient advocacy. The digital space is…
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A Day In The Life of Communications Manager, Amity Westcott-Chavez
Digital patient advocacy is one area of the profession that medical communicators specialize in especially in regards to rare disease focused organizations. This past February I had the chance to speak with Communications Manager for The American Partnership for Eosinophilic Disorders (APFED), Amity Wescott-Chavez on her role as an essential worker in the field. This is part one of a…